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APDS Assist

APDS Assist is here to help you every step of the way. Connect with a Care Coordinator for answers to specific questions or get financial assistance through our resources.

Tyler, Tyrek, Twana, Liam, Annie

Home > Resources & Support > APDS Assist

The APDS Assist team

APDS Clinical Educator (ACE)

Your ACE is here to support you throughout your journey with Joenja. Your dedicated ACE can provide education and available resources, either live or by phone.*

Contact an ACE today

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APDS Assist Specialty Pharmacists

APDS Assist provides you access to a Specialty Pharmacist with deep knowledge about rare disease treatment. They are available to help answer questions about Joenja.

APDS Assist Care Coordinators

Connect with an APDS Assist Care Coordinator Monday-Friday,
8 AM – 8 PM ET

Call 1-877-796-APDS (2737)

How APDS Assist helps patients on Joenja

We help you get started

If your healthcare provider thinks Joenja is right for you, we’re committed to getting you started on treatment as quickly as possible. Your Care Coordinator will work with your healthcare provider’s office and insurance company.

Nationwide support groups

Local and nationwide support groups and online resources are available to you.

Talk with your ACE to find out how you can get connected!

Financial support

Access to Joenja is a priority of APDS Assist. Depending on your insurance and other eligibility criteria, you may be eligible for financial support.

A Care Coordinator will provide more information about these resources.

Sign up for APDS Assist

  • When you and your healthcare provider decide that Joenja is right for you, the first step will be for your physician to complete an enrollment form that contains your prescription and send it to APDS Assist
  • To access patient support services, such as your ACE and financial support, you will need to fill out a Patient Consent Form

Patient Consent Form

Hear from our APDS Assist team

Get to know APDS Assist

4:58

Find out more about how APDS Assist works to support you.

Get to know our ACEs

4:13

Learn how our ACE team can get you started with confidence and partner with you throughout your Joenja treatment journey.*

*Please note that ACEs do not offer medical or treatment advice or replace discussions with your physician, who will always be your primary source of information.

APDS, activated PI3K delta syndrome.

Connect with an ACE

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View our downloadable resources

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Approved Use

JOENJA® (leniolisib) is a prescription medicine that is used to treat activated phosphoinositide 3-kinase delta (PI3Kδ) syndrome (APDS) in adults and children 12 years of age and older.

Important Safety Information

Tell your healthcare provider if you are pregnant or plan to become pregnant. JOENJA may harm your unborn baby. Your healthcare provider will do a pregnancy test before you start receiving JOENJA.

Approved Use

JOENJA® (leniolisib) is a prescription medicine that is used to treat activated phosphoinositide 3-kinase delta (PI3Kδ) syndrome (APDS) in adults and children 12 years of age and older.

Important Safety Information

Tell your healthcare provider if you are pregnant or plan to become pregnant. JOENJA may harm your unborn baby. Your healthcare provider will do a pregnancy test before you start receiving JOENJA.

Use effective birth control to prevent pregnancy while taking JOENJA and for one week after you stop taking JOENJA. If you plan to become pregnant, continue taking your birth control for one week after stopping JOENJA. Talk to your doctor about what type of birth control method is right for you while taking JOENJA.

It is not known if JOENJA passes into your breast milk. Talk to your doctor about the best way to feed your baby if you take JOENJA.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. JOENJA and certain other medicines may affect each other.

Tell your healthcare provider if you are scheduled to receive an immunization (vaccine). JOENJA may affect how well a vaccine works.

Know the medicines you take. Keep a list of your medicines and show it to your healthcare provider and pharmacist when you get a new medicine.

The most common side effects of JOENJA include headache, inflammation of sinuses, and dry, itchy, and inflamed skin (eczema). These are not all the possible side effects of JOENJA. Tell your healthcare provider about any side effect that bothers you or does not go away.

You can also report negative side effects to FDA at 1-800-FDA-1088 or www.fda.gov/medwatch, or Pharming Medical Affairs at (800) 930-5221.

For more information, please see the full Prescribing Information.

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USO APROBADO

JOENJA® (leniolisib) is a prescription medicine that is used to treat activated phosphoinositide 3-kinase delta (PI3Kδ) syndrome (APDS) in adults and children 12 years of age and older.

INFORMACION DE SEGURIDAD IMPORTANTE

Informe a su proveedor de atención médica si está embarazada o planea quedar embarazada. JOENJA puede hacerle daño a el feto. Su proveedor de atención médica le hará una prueba de embarazo antes de que empiece a recibir JOENJA.

USO APROBADO

JOENJA® (leniolisib) es un medicamento de venta con receta médica que se utiliza para tratar el síndrome de fosfoinositida 3-cinasa delta activada (PI3Kδ) en adultos y niños mayores de 12 años.

INFORMACION DE SEGURIDAD IMPORTANTE

Informe a su proveedor de atención médica si está embarazada o planea quedar embarazada. JOENJA puede hacerle daño a el feto. Su proveedor de atención médica le hará una prueba de embarazo antes de que empiece a recibir JOENJA.

Utilice un método anticonceptivo eficaz para prevenir el embarazo mientras esté tomando JOENJA y durante una semana después de dejar de tomar JOENJA. Si planea quedar embarazada, continue tomando su método anticonceptivo durante una semana después de dejar de tomar JOENJA. Hable con su médico sobre qué tipo de método anticonceptivo es adecuado para usted mientras toma JOENJA.

Se desconoce si JOENJA pasa a la leche materna. Hable con su médico sobre la mejor manera de alimentar a su bebé si toma JOENJA.

Dígale a su médico todos los medicamentos que esté tomando, incluso los adquiridos con o sin receta, vitaminas y suplementos a base de hierbas. JOENJA y ciertos medicamentos pueden afectarse entre sí.

Informe a su médico si tiene programada una inmunización (vacuna). JOENJA puede afectar la eficacia de una vacuna.

Conozca los medicamentos que toma. Lleve una lista de sus medicamentos y enséñesela a su proveedor de atención médica y a su farmacéutico cuando adquiera un medicamento nuevo.

Los efectos secundarios más frecuentes de JOENJA incluyen dolor de cabeza, inflamación de los senos paranasales y sequedad, y picor e inflamación de la piel (eczema). Estos no son todos los posibles efectos secundarios de JOENJA. Informe a su médico de cualquier efecto secundario que le moleste o que no desaparezca.

También puede informar sobre los efectos secundarios negativos a la FDA en el 1-800-FDA-1088 o www.fda.gov/medwatch, o a Pharming Medical Affairs en el (800) 930-5221.

Para más información, consulte la Información de prescripción completa.

About APDS

What Is APDS? Diagnosing APDS

What Is Joenja?

How Joenja Works Joenja Results

Taking Joenja

Taking Joenja

Real Patient Stories

Real Patient Stories

Resources & Support

APDS Assist Resources Recursos (Español)

Get in touch

Get in touch
Full Prescribing Information Contact Us Privacy Policy Terms of Use Sitemap Cookie Policy
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